Mason’s severe congenital Neutropenia came to light at age nine months in 2016 when we picked him up from daycare and he had a bulge on the back of head behind his ear.
Mason’s body doesn’t produce Neutrophils, a white blood cell critical to fighting bacteria and other infections. Everyone has bacteria but for Mason, it’s life threatening. After consulting with children’s hospital, we move forward with the only known cure, bone marrow transplant.
Mason’s first transplant failed and had an emergency second transplant. Albeit his body now produces Neutrophils he now suffers from other severe medical conditions including chronic GVHD of the gut and skin. Additionally, his bone marrow doesn’t produce enough of his own cells to self-sustain himself so he’s constantly infused to keep him with us.
We almost lost Mason in June as his immune system is suppressed and got a bacteria that spread rapidly. Mason’s organs began to fail and respiratory failure. He was able to recover albeit his GI track is still not functioning. Currently he’s still recovering and getting inpatient rehabilitation.
Miles & Route: Raouf will lead the 50 mile ride starting at 8am in front of Spokes. There will be maps for your use. The route is as follows: Spokes to Mack Road West through FermiLab Batavia North on Route 25 to Army Trail Road East past 59 to Kline Road, zig zag to Warrenville Road East to Leask back to Spokes. Please take time to Thank yourself & our wonderful sponsors to help make this all happen!!